Formula Assistance
Low Protein food alternatives and necessary daily formula are often times not covered by insurance and are extremely expensive, ensuring that families that are anything other than financially well off must do without. Formula subsidies for families trapped above State and Federal funding guidelines, but below discretionary income or insurance reimbursements consistently struggle with making ends meet.

Research Grants
It is the desire of The PKU Foundation to fund various organizations focused on curing and enabling the lifestyle of patients afflicted with PKU. General medical research funding is often directed toward more profitable diseases, with time, talent and attention not focused on curing this disorder. Through private donations and grants the Foundation will be able to manage, direct and control these efforts.

Birthday Baskets
PKU patients and families have annual appointments with their clinic in which they review the patient's diet performance, evaluate changes that need to be made in the coming year, and discuss psychological impacts for both the patients and their extended families. It is at these appointments that the Foundation would like to present families with a "basket" of gifts ranging from measuring cups and blenders to coloring books and recipe alternatives.

Chef Hat November 12, 2011
FREE Low Protein Cooking Workshop. Come learn low protein cooking skills & how to deal with the low protein diet in various situations. Instructor Malathy Ramanujam of Taste Connections will lead the hands-on workshop. Advance registration required.
Please complete and submit this form.
Red Balloon Run October 22, 2011
Team PKU is participating in the 2nd annual Children’s Medical Center Red Balloon Run & Relay October 22. This fun filled event will be a terrific opportunity for friends and family to come support their PKU loved one. What: 5K run/walk, 1K Family Fun Run, 20K relay plus health expo, family activities, and food zone.
Where: Children’s Medical Center at Legacy
How: Sign-up to run or walk with us at childrens.com/redballoonrun. Click “Join a Team” under “Get Started Today.” Then search Team PKU and click “Join” on the far right.
Children's Medica Center of Dallas August 24, 2011
Children’s Patient and Family Social Network will go live on August 24. It will be open to anyone who is a current or past patient or parent/guardian. The PKU Foundation and Children’s Medical Center have dedicated the past 2 years to creating this user friendly Network. Patients and families will have real time, accurate online networking available for education, support and socializing. Operating much like Facebook, but with monitoring controls and filters, this online collaboration hopes to be a national success in the very near future. Go to childrens.com to log in.


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